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Liam and Declan are my Dreamer Boys!

Liam and Declan are dreaming of the day when our whole family will be reunited once again. But until then, Declan has a tall order of being Liam's guardian angel! (I know he'll do the best job ever!)

Wednesday, December 3, 2008

I Wish I Could Say This Was My Christmas Display!

Check this out!!
Posted by Christy at 8:21 PM

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Blog Archive

  • ►  2009 (38)
    • ►  November (6)
      • Liam's Work (11-6-09)
      • Liam Update
      • On My Own and Liam's Recent Work
      • Pirate Johnny Cash
      • Afternoon at the Neurologist
      • Welcome Mason Alexander!
    • ►  October (20)
      • Halloween
      • Exhaustion
      • Chiropractic Nightmare
      • Puppy Pictures!
      • Liam's Work (10-28-09) and Day
      • My First Official Day...Well Sorta
      • Liam's Work (10-27-09) and Day
      • Liam's Work (10-26-09)
      • Spooky Symphony and Liam's Work (10-25)
      • Oktoberfest and Liam's Work (10-24)
      • Liam's New Schedule Boards and Work (10-23-09)
      • Last Night of Training & Liam's Work (10-22-09)
      • Liam's Work (10-21-09), Costume and Sloppyface
      • Bella's Cry, Liam's Work (10-20-09) and My T.Mack
      • Liam's Last Tennis Class
      • School Projects and Liam's Work (10-19-09)
      • Liam's Work (10-18-09)
      • Liam's First T-Ball Class and Fine Motor Work
      • Liam's Work (10-16-09)
      • Family Photos
    • ►  January (12)
      • New News
      • Taxes are Done!!!
      • Liam NAPPING???
      • My Program Begins!!!
      • The BIG Train That Could
      • My Chefs
      • Liam's First REAL Dentist Appointment
      • Liam's First Baby Tooth is HISTORY!!
      • A Little January Swim in the Outdoor Pool
      • Liam's Bad Word
      • Wisconsin Trip and Pictures
      • MRI Results
  • ▼  2008 (129)
    • ▼  December (13)
      • Happy Anniversary!
      • Headaches
      • It's Not Fair
      • Christmas Stockings Over the Fireplace
      • Time for a Shower
      • A Sword Holder
      • Our First Texas Tornado
      • A Cow Visit and Liam's Haircut
      • This One's For You Peter!!
      • Symbols of Christmas
      • I Wish I Could Say This Was My Christmas Display!
      • Poem to Liam for his 5th Birthday!
      • The Johnson's 2008 Christmas Letter
    • ►  November (10)
    • ►  October (14)
    • ►  September (12)
    • ►  August (15)
    • ►  July (14)
    • ►  June (10)
    • ►  May (11)
    • ►  April (4)
    • ►  March (9)
    • ►  February (14)
    • ►  January (3)
  • ►  2007 (124)
    • ►  November (4)
    • ►  October (10)
    • ►  September (26)
    • ►  August (19)
    • ►  July (15)
    • ►  June (8)
    • ►  May (16)
    • ►  April (14)
    • ►  March (12)

ABOUT LUKE

ABOUT LUKE
(he's the one being held, his dad is in the Navy attire, and brother JJ on the right)

Lukas Alan (b: 08-09-79)

I am the proudest woman on earth! I have the best hubby (married on December 23, 2001) who I am high-school sweethearts with. We went to college and graduated together at the University of Wisconsin-Oshkosh in May, 2002. Luke is the cutest computer geek in my opinion, and steals my heart every day.

He is the bread-winner of the family as a remote administrator and works for a fabulous IT company in Dallas, TX. In his spare time, he's either listening to talk radio, playing with Legos or anything to do with Star Wars' bad guys (with Liam of course - he he he), watching football, or working out down to his goal weight (he's worked off over 60 pounds and dropping - I am SO proud of him!!). He is my best friend, my better half, and soul mate. :)
Luke's Race Results
Date
Location
Time
07/04/08 Ladera Ranch 5K 37:09
08/31/08 Disneyland 5K 34:15
10/12/08 Long Beach 5K 29:45
11/06/09 Arbor Day 10k TBD
12/06/09 Rock'n'Roll Las Vegas Half Marathon TBD

ABOUT LIAM

ABOUT LIAM
(Picture Taken December '03 - First Formal Picture)

Liam Grant (b: 09-14-03)

I have given birth to 2 beautiful boys who are the light of my life. Liam is the happiest little boy, and was diagnosed with Autism and ADHD in October '07. He keeps us on our toes! :)

He is one smart, funny, loving, energetic, tender-hearted boy (not that I'm biased or anything)! :) He always makes me laugh.

I am one proud mama!!

ABOUT DECLAN

ABOUT DECLAN
(Picture Taken March '07 - His First Smile)

Declan Asher (b: 03-11-07, d: 08-08-07)

Our other little bundle of joy, Declan, was almost 5 months old when he went to heaven in August, 2007 after losing his battle with Liver Cancer (Hepatoblastoma, Stage 2) and complications with his Beckwith-Wiedemann Syndrome.

Declan was one strong cookie who laughed and smiled through the toughest of times, yet gave the nurses and doctors a piece of his mind when he wasn't happy about something. :) He lit up the room with his adorable and playful personality! He will ALWAYS be missed and loved!!
Wanna learn more about our little D? Visit his last moments here.

ABOUT ME, CHRISTY

ABOUT ME, CHRISTY
(yes, that's me)

Christy Ariel (b: 05-08-80)

Personally, I was diagnosed with Myasthenia Gravis in July '06 and have fought my way back to a somewhat normal body again.

I am beginning to volunteer at one of the most exciting hospitals one could volunteer at, Children's Medical Center in Dallas (that's for you baby boy!). I can't wait to start!! It's going to be hard work, but I know I can do it with the help of my Lord and wonderful support system!!
Christy's Race Results
Date
Location
Time
08/31/08 Disneyland 5K 31:42
08/23/09 Hottest 10k 77:13
02/27/10 Cowtown Half Marathon TBD

My ultimate example of strength and courage: Jesus and my baby angel Declan!

My ultimate example of strength and courage:  Jesus and my baby angel Declan!
(the very last picture of my sweet baby boy)

My Blog List

  • Autism Bites
    Created a New Tote
    2 weeks ago
  • Barn-icles
    Learning Early
    1 week ago
  • Blessings from Aubrey
    Wordless Wednesday
    2 days ago
  • In the World of the Thomas Familie...
    And so it begins...
    8 months ago
  • My Sweet Declan Asher
    Declan
    6 months ago
  • Once a fool, always a fool..
    13 hours ago
  • PAGANS AND LUTHERANS
    Decorative Tray
    5 weeks ago

Great Websites!!

  • Declan's Life and Journey
  • Learn about Beckwith Wiedemann Syndrome (BWS)
  • Liam's Baby Website - Warning: It hasn't been updated in a long time!!

Great Music!!

  • "Behold, A Host" (Hymn sung at Declan's Memorial Service)
  • "Declan's Theme Song!" (by Songs of Love Foundation)

Great Movies of my little D!!

  • Declan (7-15-07)
  • Declan (7-18-07)
  • Luke (8-9-07)

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My Sweet, Brave Declan

A Brief History of Declan

  • Born 3-11-07 in Madison, WI and Baptized Minutes After Birth :)
  • Diagnosed with Beckwith Wiedemann Syndrome (3-13-07)
  • In the NICU with Hypoglycemia complications (3-11-07 to 4-9-07)
  • In the PICU with Pneumonia (4-20-07 to 4-26-07)
  • Liver Mass Found after Routine Ultrasound (4-27-07)
  • Liver Resection Surgery (5-3-07)
  • Biopsy Results - CANCER - Hepatoblastoma, Stage 2 (5-9-07)
  • 2nd Surgery - Central Line Placed (5-17-07)
  • 1st Round of Chemo Started (5-18-07) - Cisplatin, Adriamycin, 5-FU, and Vincristine
  • Declan Home! (5-21-07)
  • Admitted to Hospital - Central Line Infected, Hydrocele detected, Nausea, Fever, Blood and Platelet Transfusions, TPN Started, and Electrolyte problems (5-23-07)
  • In the PICU - Apnea Spells (5-29-07)
  • 3rd Surgery - G-tube Placed (6-8-07)
  • Staph Infection (6-16-07)
  • Family Moved to CA from WI (6-25-07) - Admitted to CHOC
  • 2nd Round of Chemo Started (6-28-07) - Half of Original Cisplatin, Adriamycin, 5-FU, and Vincristine
  • 3rd Round of Chemo Started (7-19-07) - Half of Original Cisplatin, Adriamycin, 5-FU, and Vincristine
  • In the OICU - Blood and Platelet Transfusions, Respiratory Problems, Fevers (104!), Nausea, Electrolyte problems, G tube Infection, Blood Sugar problems (7-29-07)
  • Respiratory Arrest and Seizure - Intubated, Blood, Platelet, and Plasma Transfusions, Sedation with Nartotics, 5 Antibiotics, new IVs in his head, foot, abdomen, and 2 in his groin, Fluid build-up in abdominal tissues, billy-ruben in urine, hard right side of abdomen, Wheezy lungs (8-1-07)
  • Went to Heaven (8-8-07)